Cancer

[SeoReborn]

2 months ago my wife went for a smear test and they found there were adnormal cells CIN3. 5 weeks ago went in to get a Leep where they also took a sample to analyze. Last Friday (14th Oct), we met with the consultant who told us there is cancer. He says the likely procedure would be a hysterectomy (which typically follows with chemo and/or radiation).

I’ve asked him a variety of questions for which he doesn’t seem to have much of a clue. He refers me to chat to the next specialist who we shall be arranged to see in one or two week’s time. I asked him what stage the cancer is, he said he does not know. I asked him how far it would have spread, he says they would find out after the hysterectomy. I find this pretty appalling.

He also said the hysterectomy, sometimes may entail cutting off the ovaries too, so she would require hormone replacement therapy if that happens.

Cut a long story short, my wife is not eager to have a hysterectomy (and possibly going through chemo/radiation), so we started on a bunch of supplements to sort it out ourselves.

Built up to 2500mg B17 on Sunday, and she felt heart palpitations. She had another 1000mg B17 this morning, and the heart palpitations continued. Took some chinese herbs which improved her condition. I believe it’s the B17, and we are ceasing the dosage. When the palpitations are gone, we’ll build up the B17 dosage again until we find the highest dosage without the side effect.

I’ll be asking the consultant for scans which I can use as a baseline and delay the hysterectomy to see how the alternative treatment goes.

 

[ks1905]

Hey Man,

Sorry to hear about that. I have some health conditions of my own and have been dealing with doctors for years.

Do you live in the US? If so, then just find another doctor who accepts your wife's insurance, it sounds like your wife's doctor is an idiot and neglectful. Insurance companies are less strict with what they pay for when it comes to a cancer diagnosis, just make sure that everything is pre-approved or accepted by the insurance company before you go, you don't want to be on the hook for thousands of dollars. For budgetary purposes I'd also plan on paying the max out of pocket deductible for the year. If the insurance plan isn't good then I'd shop for a new one for next year that covers as much as possible.

I've fired a bunch of doctors over the years and finally found one that I can work with and takes the time to explain things to me and is open minded.

I go to a University/teaching hospital, that's where the best doctors are usually located, they have the most resources and the most experience. They also know about what the future treatments will be and can sometimes get them for you prior to them being approved by the FDA.

I'd ask to get a DNA test, it may give some clues on what the best medications are for treating your wife's cancer and how aggressive the disease is. I'd also go for a 2nd opinion from another doctor, just to make sure that the first diagnosis is correct and the treatment protocol is correct.

Some doctors don't know how to talk to patients, which is unfortunate because going to see a doctor when you are really sick can be overwhelming. I always plan ahead and write down questions, changes in my condition and medications, I then give a copy to my doctor and we go over them together and I take notes on my copy.

 

[SeoReborn]

We are in the uk. So no doctor to fire as we are using the nhs. However I believe all conventional doctors will provide the same barbaric treatment regardless.

My wife's heart palpitations have improved but not completely. She is feeling pain in the groin area, it could be the treatment taking effect as she has not had any cervical symptoms before.

With this heart papitation side effect, I doubt we will be able to achieve 3000mg of b17 per day that the protocol requires. We would probably reach 1500mg to 2000mg per day.

Since it's not ideal, we are adding an additional treatment, bicarbonate and molasses. First dose will start tonight.

She is presently also taking other supplements too including mega doses of ip6.

I'm looking for clinics that do urine hcg tests to get a baseline for the cancer.

 

[Concept]

Hey mate,

Sorry to hear about your wife. My wife has recently suffered from medical issues too, so I know how hard it can be to support a wife going through a condition that you know little to nothing about.

ks1905 hit the nail on the head. Keep searching around for doctors. For my wife's condition we have spoken to a dozen different specialists, physios and doctors to figure this out. We finally have a small group of specialists who we get along with really well, know what they are on about, and have experience in exactly what we are dealing with. It took us a while but we are finally getting some headway.

In regards to the cancer, please continue to see doctors and specialists in that area. I know that a hysterectomy with chemo can seem like a scary option, however talk around with other doctors and specialists. Timing is important with cancer. Through my mum, who has been a cancer nurse for 30 years, there are way too many stories I've heard where people have completely dismissed Western medicine to try alternative methods. They come back 6-9 months later after it hasn't worked and the cancer is 10x worse. I'm not saying completely stop the alternatives you are trying, just don't stop seeing advice from doctors and specialists. Sometimes the one, two punch can help.

All the best mate.

Concept

 

[SeoReborn]

I don't think it would take us more than 3 months to figure out if we should go with the conventional treatment. First we need the baseline from scans and urine tests. So after a month or 2, if we see hcg scores down and/or scans showing reduction in cancer, we know it's working. If however, the cancer has grown from the scans and the hcg scores increased, we know we should consider the conventional way.

Oh one other detail about my background which gives me hope, is my dad had lung cancer 2 years ago. Some may remember I wrote about this in wicked fire. He had the aggressive form and stage 3. He followed the diet and supplements 30% of the time for 3 months. His scans showed the tumour reduced in size very slightly. However, he gave up in life because my mum passed away the year before. So he stopped the protocols altogether, giving up on the supplements and eating whatever he wanted. In the next 3 months his tumour doubled in size and he passed away. From that I can conclude it could only have been the protocol he was doing that kept the tumour from growing and he was following it 30% of the time.

 

[Nat]

I have absolutely 0 expertise in this area (medically). But I really feel like I should say something. I had a really, really close family member deal with cancer. Positivity will go a long way. The right attitude can have more impact than most people will ever understand. After visiting the hospital... lots of times... so many of the patients that lasted 'longer' or were healed had these incredibly powerful positive auras around them. And then, there were people who had given up. Keep fighting and doing everything you can. Stay strong.

On another strange note, check out juicing.

 

[Concept]

Thanks for sharing mate. Sounds like cancer has been a real bitch to your family over the last couple of years. Kick it's arse for us.

Great to hear that the diet and supplements helped with you dad too. I totally support alternative methods, and if they work, great, however, I still strongly suggest you continue seeing doctors and specialists over the next 3 months as you test the supplements and diets.

If you succeed with the supplements, the worst that has happened is you wasted some time and money on seeing the doctors (long term no big deal). However, the flip side of that is if the supplements don't work, you will be 3 months ahead with the doctors and specialists, which can make a huge difference with cancer. They will also be able to pick up things that the alternative therapy service providers may miss (and vice-versa).

So in short

 

[SeoReborn]

I have absolutely 0 expertise in this area (medically). But I really feel like I should say something. I had a really, really close family member deal with cancer. Positivity will go a long way. The right attitude can have more impact than most people will ever understand. After visiting the hospital... lots of times... so many of the patients that lasted 'longer' or were healed had these incredibly powerful positive auras around them. And then, there were people who had given up. Keep fighting and doing everything you can. Stay strong.

On another strange note, check out juicing.

Definitely, a positive mindset is most important.

Wife doesn't have heart papitations or pain anymore. Will start b17 again tonight.

Took another dose of bsms (bicarbonate and molasses) this morning. Will stick to 2 of these per day.

The treatment is basically metabolic therapy, mega doses of ip6 and moderate bsms protocol.

Was about to phone clinics to see if they do quantitative hcg urine tests. But wife wants to go to the botanic gardens, so we'll go there. Also will be booking a Nagalase test in London.

 

[Andrewkar]

I have absolutely 0 expertise in this area (medically). But I really feel like I should say something. I had a really, really close family member deal with cancer. Positivity will go a long way. The right attitude can have more impact than most people will ever understand. After visiting the hospital... lots of times... so many of the patients that lasted 'longer' or were healed had these incredibly powerful positive auras around them. And then, there were people who had given up. Keep fighting and doing everything you can. Stay strong.

On another strange note, check out juicing.

I've said to myself some time ago that I'm not going to take part in discussions like this one because I'm really not qualified or experienced enough. But as @Nat said "positivity" is a huge deal IMO. Stress kills entire immunologic system, so it just can't do what it should. Long term stress creates hopelessness at some point also, and that is very bad thing for cancer patients. Or it could be just hopelessness induced by some life event.

My father in law took LDN (low dose Naltrexone) and he managed to survive stage IV skin cancer, a bitch to say the least. Interesting thing is that Naltrexone is a drug used to cure addicts of all sorts, it works with opioid system and "trick" addict into a positive state of mind so he don't need to use drugs, alcohol, sex or whatever. This on the other hand boost immune system.

I know about one alcohol addict that was diagnosed with pancreas cancer, a deadly bitch as you know. He survived with him many years without any treatment, something shouldn't happen. The guy who was consulting with him concluded that it must have been due to high usage of alcohol that actually kept his positive attitude (yeah, I know how it sounds...). I'm not sure now because don't remember but I think the guy switched to Naltrexone at some point and limited his usage of alcohol as well.

Another somehow tested and worth a try thing is Gerson protocol. In general just low GI fresh organic juices. No proteins, no simple carbs, no anything that can overstimulate mTOR pathway (on the other hand all bodybuilders are doing just the opposite, striving to overstimulate it to get greatest possible gains...).

On the other hand there was some time ago a meat eater, the guy ate just meats of all sorts (and LC animal products). He was diagnosed with brain cancer I think (can't remember now), he took chemo and all that things and he survived as well. He was killed at his 70's in car accident. He said he survived due to his 100% animal based diet, maybe there was something about it... VLC diet tends to keep good balance between metabolism and catabolism. No over stimulation of metabolic pathways over what's is really needed at any point. The meat eating guy was The Bear Owsley (Owsley Stanley) from Grateful Dead band. He took in his life soo much LSD and other things that one could't believe. He was even called "Grateful Dead’s LSD Cook ".

In general, what comes from my research and is most likely true is that keeping metabolic pathways "low" is a good thing to do, and that is also one of many common denominators of different alternative protocols that have some positive outcomes, just anecdotal in most cases, but still.

Another protocol with some good research behind, it and tests it's called IV Sodium Ascorbate. Just a solution of sodium ascorbate (sometimes with additional agents) served via IV. It's again all about stress, oxidative stress that is. Pioneered by Linus Pauling (two times Nobel prize), then used and improved by r. Robert F. Cathcart III, MD. In general, sodium ascorbate served via IV flushes away free radicals, and boost immune system.

Next one is Dr. Burzynski protocol called Antineoplastons. He operate his clinic in US, site at http://www.burzynskiclinic.com/. If I remember correctly he had problems with FDA etc. regarding his protocol. But he was also seen in major media outlets. Don't know anyone who undergo this protocol as he is based in US. But from what I know from people much more clever than me in the subject, Burzynski's protocol is bordering on a sort of conventional medical protocol. It's very serious, well researched and constantly developed.

And the last thing, but very important IMHO. Raw diet I'm not a raw vegan freak so don't worry, I won't promote here this kind of a lifestyle. BTW, I think raw vegans are ok, but some of them are real freaks. There was a study made on cats by physician Francis M. Pottenger, Jr. To make it short, he was experimenting on many generations of cats. Some where feed raw foods (in many different setups), some were feed thematically processed foods (in many setups) and others ate diet composed of both, raw and processed foods. Conclusion? The more raw food was given to the cats, the better their overall health was, and, and this is important, healthier offspring was born. Now, I know we are not cats, but this is something worth a second thought I believe, because after all we are also blood and flesh (at least at this stage...).

Just another interesting thing regarding thermally processed food. Dr. Paul Kouchakoff - Nobel Prize Nominee "The Influence of Food Cooking on the Blood Formula of Man of the Institute of Clinical Chemistry, Lausanne, Switzerland, Proceedings: First International Congress of Microbiology, Paris 1930."

After over 300 experiments on ten individuals of different age and sex, we have come to the following conclusions: 1. The augmentation of the number of white corpuscles and the alteration of the correlation of the percentage between them which takes place after every consumption of food, and which was considered until now as a physiological phenomenon, is, in reality, a pathological one, It is called forth by the introduction into the system of foodstuffs altered by means of high temperature, and by complicated treatments of ordinary products produced by nature.

In general is all about idea called "Digestive Leukocytosis". There are many different views on the subject these days, but no serious investigations have been done.

Then there are things like B17 which has some anecdotal backup as well. From what I've heard from people who are actually using it with their "patients", most B17 protocols we can read about, is relying on a way too low dosages, but this is only what I've heard.

So this is it, just few probably best anti-cancer protocols we can count on. And @SeoReborn I'm sorry to hear about your wife, wish you all the the best and mostly positive attitude in this time (but I know you have it).

 

[jayk]

Are you able to get second and third opinions?

I ask because my buddy's wife was told that they found cancerous cells in her thyroid and would need to put her on copious amounts of medication and undergo treatment for it.

She got two other opinions and the doctors didn't find anything. It's been 3 years now and she's fine.

You said yourself that the doctor doesn't have a clue. It could be my paranoid self, but doctors get big money when their patients undergo cancer treatments. It makes me sick to think a doctor would submit someone to chemo and radiation just to line their pockets, but I've heard of worse on American Greed (the show).

 

[SeoReborn]

Started B17 again in evening yesterday.

Once in the evening, and also this morning. She doesn't have an appetite this morning. Not sure if to do with the supplements or not.

The Nagalase test: https://gcmaf.se/nagalase-blood-test/

They don't do it London anymore.

I also phoned around for urine HCG test, which they don't do. So I'll need to send it to the philipines http://www.navarromedicalclinic.com/index.php

Heres how it works: http://www.anticancermom.com/hcg-cancer-test/

Ordered the equipment from Amazon, will take a few days to arrive. Will need to stop the Vitamin D supplementation 3 days before the test. Also will stop almost all supplements 24 hours before the test just in case.

Then there are things like B17 which has some anecdotal backup as well. From what I've heard from people who are actually using it with their "patients", most B17 protocols we can read about, is relying on a way too low dosages, but this is only what I've heard.

Phase 1 of the metabolic therapy requires 6 tablets (i.e 3000mg per day). I doubt we can get to that much. Thats why we added BSMS too.

Are you able to get second and third opinions?

I ask because my buddy's wife was told that they found cancerous cells in her thyroid and would need to put her on copious amounts of medication and undergo treatment for it.

She got two other opinions and the doctors didn't find anything. It's been 3 years now and she's fine.

You said yourself that the doctor doesn't have a clue. It could be my paranoid self, but doctors get big money when their patients undergo cancer treatments. It makes me sick to think a doctor would submit someone to chemo and radiation just to line their pockets, but I've heard of worse on American Greed (the show).

Apparently the consultant said the sample was looked over by a 'bunch' of specialists and that is their conclusion.

There is no way we will have a hysterectomy before any further tests.

Last Friday, they said the nurse would call us on monday and she didn't. They said we would get to be see by a specialist this week, and have not recieved a appointment yet.

Oh this reminds me. That consultant did say its 'unclear margins' but he was adament its cancer.

one other thing, I started a thread like this one on Mc Millan Cancer support forum. After 2 days, they deleted my thread and banned my account without warning.

Amygdalin induces apoptosis in human cervical cancer cell line HeLa cells

http://www.tandfonline.com/doi/abs/10.3109/08923973.2012.738688

I also posted on cancer research forum. They have taken it down too.

Dear ...


The Cancer Chat moderators drew your post to my attention as they were concerned about your wife and the symptoms she is experiencing while taking alternative therapies. After reading it, I am very concerned and would urge her to seek medical advice from her GP or her specialist as soon as possible.


I also wanted to stress again that, in spite of misinformation available on the internet, the therapies she is taking are unproven and potentially dangerous.


It is unlikely that the doctors would be able to monitor her accurately through scans to see if these are working. It is not unusual for information obtained during surgery to be needed in order to stage some cancers accurately. Although scans can be extremely helpful as part of investigating and staging cancer, they are often unable to distinguish accurately how deeply a cancer has grown into surrounding tissue and for invasion into the blood stream and lymphatic system.


I do appreciate what a difficult decision she is faced with and how hard things must be for you both at the moment. If she is concerned about the treatment options she has been offered, then the best course of action would be to seek a second medical opinion, but with the understanding that the second doctor may be of the same opinion as the first ,there is information about this here.


Once again as she has experienced palpitations she should seek medical advice as soon as possible.


I hope things become clearer for you both soon. Please do call our helpline if you think it might be helpful to talk things through with one of our nurses. The lines are open from 9 to 5 Monday to Friday and the number to call is 0808 800 4040


Yours sincerely



Martin Ledwick RN

Head Information Nurse

Cancer Research UK

Angel Building

407 St John Street

London

EC1V 4AD

Freephone: 0808 800 4040

Website for cancer information, CancerHelp UK: http://cancerhelp.cancerresearchuk.org

Cancer Research UK website: http://www.cancerresearchuk.org

Hello



We have taken the decision to unpublish your thread as by continuing to promote alternative therapies, your thread was breaching our terms and conditions. We ask our members not to advocate or promote alternative therapies on Cancer Chat.


We know you posted with the best of intentions and thank you for your understanding.

Best wishes,
Lucie, Cancer Chat Moderator

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They consider me documenting the use of alternative treatment as promoting alternative treatment.

No where in my posts, did i say it would work or ask others to do alternative treatment. In this thread I did mention about my dad and his tumor not growing in 3 months, but did not include it in their forum.

Got a phone call from the nurse. We will see the gynecologist tomorrow 2.30pm.

 

[SeoReborn]

Had a more detailed chat with the Gynecologist.

The cervical cancer she has is stage 1b1. From the previously done Leep, the sample shows the cancer to be 7mm wide and 1.4 mm depth. He says its a rare case as normally the cancer would have more depth. Could it be to do with the low carb diet she was on for 2 years that the it has not progressed further in depth.

He says that area of the cancer has been removed as its been taken out as the sample, but there remains cancer that they did not take out on the side.

He discussed treatment, as in radical and typical hysterectomy. MRI pelvic scan has been arranged for next Tuesday. He will be discussing with the pathologists today, and we will have another appointment in 2 weeks time to discuss plan of action.

My wife is experiencing heart beat issues and kidney pains since starting the B17 again. We stopped the B17 and most of the other supplements (continued with BSMS twice a day). She feels better today.

We are abandoning the B17 as part of our protocol. Others may be tolerating it well, but she isn't. After she recovers, she'll go back on the other supplements minus the B17. We are increasing BSMS to 3 times a day from today (to compensate that we are losing one protocol against cancer).

 

[Golan]

Damn man, too much for your family... My sincere wishes, since i can't help with anything else.

 

[SeoReborn]

Thanks Golan.

Going for the MRI scan today.

 

[SeoReborn]

Went to speak with the consultant today.

MRI is clear, can't detect cancer. He recommends a typical hysterectomy or a radical hysterectomy to reduce risk of reoccurance. Told us to think about it.